工程师盼唤醒关注溶酶体病症.单骑1千公里请愿
Read more at Sin Chew
工程师盼唤醒关注溶酶体病症.单骑1千公里请愿
Read more at Sin Chew
A rare disease is any disease that affects a small percentage of the population and are frequently debilitating to patients. Timely access to the right treatment is crucial for effective…
WORLD Rare Disease Day (WRDD) was celebrated last week. An annual commemoration initiated by the European Organisation for Rare Diseases, WRDD was celebrated for the first time on Feb 29,…
Do you know that rare disease day is on the last day of February? Many of you may not be aware of how many patients and families are affected by…
Petaling Jaya: “Mungkin hanya segelintir orang kurang upaya (OKU) yang bekerja sebagai jurusolek di sini (Malaysia) namun kerjaya ini tidak asing lagi bagi masyarakat di luar negara. “Malah, saya percaya…
Abstract Objective Rare diseases are often underdiagnosed, and their management is frequently complicated by a lack of access to treatment and information about the diseases. To allow for better policy…
KUANTAN: Masih segar di ingatan Mohd Nazrul Mohamed Saat, 34, dan isterinya Zuraida Baharuddin, 36, pemergian anak sulung mereka Nurul Fatin Nadilla 12 tahun lalu akibat penyakit genetik. Kini, pasangan…