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Living Life in The Face of Muscular Atrophy

Branden Lim was testing out a prototype wheelchair when Malaysiakini arrived at his home in Damansara Jaya for an interview. “Wheeee,” the seven-year-old said with delight as he navigated his…

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Malaysia Rare Disease communities, especially the children’s, has been embroiled with many day to day challenges for a long time. This website highlights the challenges faced by them, recommended solutions, tribute to Malaysia Rare Disease warriors / heroes, recognition to Malaysia Rare Disease champions, as well collection of media coverage on Malaysia Rare Disease. Ultimately, we desire to bring together NGO’s, government officials, medical professionals, corporates, policy makers, and citizens of Malaysia as one entity to help Malaysia Rare Disease communities, especially the children’s, in best interest of their future so they too could lead near normal life like any other child in Malaysia.

wecarejourney

Living Life in The Face of Muscular Atrophy

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